The A number of Sclerosis Affiliation of America (MSAA) Selects SEQSTER to Speed up Affected person-Centricity & Innovation

MSAA is proud to pick out cutting-edge knowledge sharing platform that can unify individuals residing with MS, researchers, and care facilities nationwide

SAN DIEGO–(BUSINESS WIRE)–SEQSTER PDM Inc. (“SEQSTER”), the main patient-centric healthcare know-how firm, has been chosen by the A number of Sclerosis Affiliation of America (MSAA) for its patient-centricity, 1-Click on Information and cutting-edge longitudinal well being document. SEQSTER unifies individuals residing with a number of sclerosis (MS), researchers, and care facilities nationwide.

This announcement follows the creation of the A number of Sclerosis Implementation Community (MSIN), which MSAA launched in collaboration with Novartis Prescription drugs Company in Could 2023. The MSIN is a patient-centric initiative that goals to enhance the standard of care and well being outcomes for individuals residing with MS. MSIN will do that by connecting taking part healthcare professionals, sharing knowledge and experiences, and creating a research-driven knowledge atmosphere.

MSIN knowledge infrastructure, powered by SEQSTER’s progressive working system, will function a mannequin of innovation, enchancment, and implementation of evidence-based care and greatest practices that join taking part healthcare professionals, spanning from MS complete care facilities to community-based neurologists. In sharing knowledge and experiences by way of SEQSTER’s Working System, this implementation analysis community allows taking part facilities to be taught from one another whereas contributing to analysis to enhance the standard of care and well being outcomes for individuals with a number of sclerosis.

“I’m deeply honored and profoundly excited to witness the exceptional collaboration between MSAA, clinicians, tutorial researchers, trade companions, and SEQSTER for the A number of Sclerosis Implementation Community. This transformative initiative, powered by SEQSTER’s groundbreaking working system, has the potential to redefine the panorama of a number of sclerosis remedy and administration. By uniting healthcare professionals, researchers, and the resilient MS neighborhood, we will harness the immense energy of knowledge and 1-Click on Information to remodel evidence-based care and elevate well being outcomes to unprecedented heights,” states Ardy Arianpour, CEO & Co-Founding father of SEQSTER.

MSAA President and CEO Gina Ross Murdoch acknowledges the pressing want for this important analysis and tremendously helps the collaboration on this initiative. Ms. Murdoch explains, “The A number of Sclerosis Implementation Community is an progressive analysis program designed to determine the most effective remedy and administration of MS. Powered by SEQSTER’s superior working system, this analysis will combine medical and observational findings from the medical crew with the views communicated by the people residing with MS and their care companions. Aligning completely with MSAA’s mission of Enhancing Lives Right this moment for the whole MS neighborhood, the aim of this distinctive, patient-centric analysis program is to create a studying well being community designed to supply the most effective well being outcomes for individuals with MS.”

Dr. Maria E. Fernandez, PhD, Vice President of Inhabitants Well being and Implementation Science at UTHealth Houston Faculty of Public Well being and co-Director of the UTHealth Houston Institute for Implementation Science will function the MSIN’s Principal Investigator alongside Dr. Leorah Freeman, MD, PhD, a frontrunner in MS care and analysis and Medical Director of the MS and Neuroimmunology Heart at UT Well being Austin, the medical apply of Dell Medical Faculty.

To be taught extra in regards to the A number of Sclerosis Implementation Community, please go to https://MSINresearch.org.

For extra details about the A number of Sclerosis Implementation Community, please contact Diana Cruz, MSAA’s Supervisor of Public Relations & Engagement at (800) 532-7667, ext. 103, or through electronic mail at dcruz@mymsaa.org.

About MSAA

The A number of Sclerosis Affiliation of America (MSAA) is a nationwide nonprofit group and main useful resource for the whole MS neighborhood, enhancing lives right this moment by way of important providers and help. MSAA offers quite a few applications and providers for free of charge, together with: a Helpline with skilled specialists; award-winning publications, together with The Motivator journal; academic movies, webinars, and analysis updates; a cell phone app, My MS Supervisor; security and mobility gear merchandise; cooling equipment for heat-sensitive people; MRI funding; My MSAA Group, a peer-to-peer on-line help discussion board; MS Conversations weblog; a medical trial search instrument; podcasts; and extra. For extra data, please go to www.mymsaa.org or name (800) 532-7667.

About A number of Sclerosis

A number of sclerosis (MS) is a illness of the central nervous system (CNS), which consists of the mind, optic nerves, and spinal wire. MS damages or destroys the protecting overlaying (referred to as myelin) surrounding the nerves of the CNS, and may doubtlessly injure the nerves as effectively. This injury causes lowered communication between the mind and nerve pathways. Frequent MS signs embody visible issues, overwhelming fatigue, problem with stability and coordination, despair and cognitive points, and numerous ranges of impaired mobility. The prevalence of a number of sclerosis is estimated at almost a million individuals nationwide, and most of the people with MS are identified between the ages of 15 and 50. MS just isn’t contagious, and researchers proceed to search for each a trigger and a treatment.

MSAA’s Communications & Advertising Division 375 Kings Freeway North, Suite B, Cherry Hill, NJ 08034 Telephone: (800) 532-7667 | Fax: (856) 661-9797 www.mymsaa.org

ABOUT SEQSTER

SEQSTER is the main healthcare know-how firm that breaks down well being knowledge silos at scale. Its enterprise working system aggregates disparate well being knowledge sources right into a single, 360-degree view of a affected person in real-time, fixing a mess of challenges for all times sciences, affected person engagement and knowledge interoperability.

SEQSTER has nationwide protection of EHRs from hospitals and medical teams, genomic DNA, wearables, pharmacy and social determinants of well being knowledge. By means of its customizable white-label method, SEQSTER offers accelerated entry to de-identified, tokenized, real-time knowledge and complete curated knowledge to handle important wants throughout the healthcare continuum. SEQSTER is privately held and headquartered in San Diego.

To be taught extra in regards to the SEQSTER Working System for Medical Research, Affected person Registries and the Digital Entrance Door, please contact us at information@seqster.com or go to www.seqster.com.

Contacts

Invoice Douglass

press@seqster.com